Month: September 2018

Test Me Again Already

Here is diagnostic imaging. More times than not there is no one sitting at the desk. Thus the bell. I cannot figure that out. I mean, why not sit at the desk? Why sit behind the door and wait for someone to ring a bell? Strange. But I digress. 

ONCE. Ring it ONCE.

Why Here?

This is the area where I get my MUGA scan done. This is my 4th MUGA. And I’ve had other tests done in diagnostic imaging too – I had my port put in here. Had a couple of CT scans of my carotid and renal arteries after the heart attack. An MRI after the initial breast biopsy to help them determine how much of my boobs they’d chop off. An angiogram to figure out why I had the heart attack. That’s all I think. (You could also have a  bone density tests, x-ray, ultrasound – oops had one of those when I was passing a kidney stone. Forgot about that one. But there are a lot more tests there and I am not having them.)

This is the volunteer guy who walks people to the correct room. Why? Because it’s a freaking labyrinth. (You’ll note he’s walking away from me. I know my way.)

All volunteers wear green vests. Very fashion forward.

The MUGA

First of all the guy who does the test is not a nurse. He’s a nuclear medicine technologist and he is one of my favs at PRHC (other than you Jen). He is super friendly and reminds me of Brent Butt. Spitting image. But all business and not very funny. Ok not funny at all. 

 Doppelganger.

MUGA stands for multiple gated acquisition. (Huh? Don’t worry about it. Keep reading and you might see that there are some gates. Or you might not.) Getting the MUGA is a three-step process. You get the first injection (needle) in a little office. 

Needles don’t hurt. It’s all in your mind.

The stuff in the first injection is a tracer. It essentially helps the radioactive stuff in the second injection stick to your red blood cells. You have to wait 15 minutes after the first injection, then Brent will come and take you to the machine where you get your second injection. (You’re not allowed to take pictures of all this stuff so my photography had to be done skillfully and without Brent noticing. Heh heh.) 

Setting up for the Test

The second injection happens JUST before the test and that is done in a big expensive machine called a gamma camera. There are 2 at the PRHC.  

See? Totally looks like Brent. I mean … look at the machine.   

The remainder of the MUGA prep happens on the very narrow but relatively comfy million dollar bed:

  • 2 sticky electrodes are put on my chest and 1 on my side (clothing choices matter, people!) 
  • 3 leads (long wires) are hooked up to the pads (to measure the heartbeats) 
  • Brent gives me the 2nd needle, this one full of radionuclide with a half life of 6 hours (honestly the radioactive stuff is set up on a little table in such as way that you feel like you’re in the Princess Bride and about to be stretched or given a secret potion)
  • I have to put my left hand under my head and my right hand under my butt which feels comfy for the first minute or two
  • BRENT covers me with a blanket (not warmed – meh) and the bed slides into the big camera
  • the plates lower over me until its about 5cm away from my chest 
  • the lights dim and I am instructed to lay still and not to fall asleep (slows your heart)
  • I lay there for 10 min listening to 80s music and trying not to swallow, sneeze, move or think about the fact that my left shoulder is slowly popping out of my skeleton
  • the room is cold because the machines give off a lot of heat … I’m thankful for the blanket and for the triangle wedge under my knees – I think about how nice that would be when you lay in savasana …anything to avoid thinking about the searing pain in my left shoulder
  • finally get to reposition after 10 min – now both hands have to go under the butt 
  • lay still for 10 more minutes and chill out to Genesis and Glass Tiger 

Why do I even have this test?

Brent explains that the scan itself is essentially a movie of the heart beating.  They are measuring the strength of the muscle as well as the “ejection fraction” or the rate at which the heart is pumping the blood out. If the scores drop then my oncologist re-evaluates my treatment because one of the major side effects of Herceptin, the treatment I’m getting for my HER-2 positive breast cancer, is that it can be pretty hard on the heart. (But the heart attack was TOTALLY UNRELATED.)

Ta ta to Brent – I’ll see him in another 9 weeks for MUGA #5. 

Coming Up For Air

It’s coming up on a year since that first mammogram … holy hell, so much has happened since then. It’s a bit surreal to think back on it. I ran into an old BFF today while searching for yard duty vests at Talize (because that’s what all good Ps do) and we were chatting about it. Her son, now 20 and happily shopping too, was diagnosed with Hodgkins Lymphoma when he was 10. We talked about how, once you’re diagnosed, you are basically swept along from one appointment to the next. It’s just happening to you. And then it slows down and you come up for air. 

Salty Air

I came up for air – after the surgery, chemo, heart attack and kidney insanity – and as soon as we could, we went on a family road trip to PEI. Because if I’ve learning anything from this shit show, you can’t keep saying “we’ll do that next year”. 

cheesy photo
Everyone must have one cheesy trip photo. Here’s ours.

We had a grand time on the road, in Montreal, staying at whack places, traversing PEI.

riding by the sea
One should always rent bikes. Especially when in flat provinces.

And then, the best of all, visiting Deborah and Michael in Maine. It was so great. The sea, the air, the creepy things they made me touch, the seaweed, the rocks. 

low tide
You can’t be a wimp if you want to get to the kayaks at low tide. 
Maine coast
The rocks on the Maine coast are so gorgeous. Hence the black and white artsy shot. 

Hot Air

And then that was done and we came back to Ontario where everyone was melting. I threw myself into doing practically nothing at the lake. It was pretty much the best summer for being by a lake. Hot and hot and hot. 

reading on the dock
No Netflix at the lake, only good books.

I decided I’d better do SOMETHING  productive, so I finished a project that I started two years ago (… because if I’ve learned anything …). When we first bought the place the little bunkie was stinky and dated. We ripped the laminate flooring off of the floor and counter and backsplash (they must have really loved it). 

counter after stripping it
Pretty rough.

I tiled the counter and planned to cover up the black marks on the wall that was left from the glue. 

 

tiling job
My first tiling endeavour. (Not giving up my day job.) 

I bought some old tin ceiling tiles and scraped them till the loose paint was off then cut them to fit each space. With tin snips from 1902. That was fun. Then I sprayed them with varathane a couple of times. It’s amazing how you can think there’s no wind but there really is wind. Just sayin’. 

cutting tin
A great forearm workout. Can’t get that at cardiac rehab!

Gluing the rectangles to the wall was a bit trickier than I’d anticipated. The pieces needed to be pushed against the wall till they set … about 12 hours. I had to be creative and brace them with various objects. 

bracing the backsplash
By the end I had garbage pails, chairs, sticks and utensils wedged against the backsplash. McGiveresque.

In the end the wall looks pretty good. 

backsplash done
Kinda weird but I like it.

Not long after I got the idea to use tin for backsplash, I decided that I could use the scraps to make up some fish to hang on the wall. You know, “tie in” the backsplash. I’d seen some done a few years back – don’t know where – and somehow they stayed in my memory. So I went for it.

  • Tip: don't use white glue.

I really enjoyed making the fish – and I think that they turned out really well. So I hung them on the crapper at the top of the path so that EVERYONE has to look at them. 

fish on the outhouse
Swimming away from the stank.

I figure that if I decide Dougie starts to ruin education and I have to quit, I’ll make fish and sell them on Etsy. I mean, everyone needs a few tin fish on their walls… 

And Now? 

New school and pretty freaking tired… but I’m loving it and am finding ways to cope. The kids are amazing – everyone has to choose a night to make dinner. (I have a feeling that my next blog entry might be on teenager dinners … ) We all commit to having dinner together at 6:00, including me (which is hard but I did it every night in this first week so that’s something). So far so good. Week two could be a bit hellish with a MUGA scan and two late nights at school (Council mtg and Open House). So we’ll see how I’m doing on Friday. 

I likely won’t look like this. 

me with flower

PS Only 6 treatments left …